Just Diagnosed? Is This Your First Connect?

Welcome to the NFED! We are glad that you have found our website. If you or someone you love has been diagnosed as being affected by ectodermal dysplasias, it’s easy to feel confused or overwhelmed by the information about the disorders and how it affects your body. Or, maybe you are frustrated by the lack of information you have found for your particular syndrome. Perhaps you have known your diagnosis but are finding the NFED for the first time. We understand and stand ready to help you with caring support, information and answers! 

You will find extensive information on the NFED website. First, you must complete the registration formThis entitles you to receive our newsletter, The Educator, Enews Updates, care provider referrals, and to network with other individuals in the NFED community.

Through our First Connect Program, we will contact you with helpful information and answer any questions you may have. Upon receipt of your completed form, we will send to you an extensive information packet on the ectodermal dysplasias and NFED services.

You can also contact Kelley Atchison, NFED Director, Family and Community Programs, at 618-566-6873 or info@nfed.org, who will welcome you personally and help you.

National Foundation for Ectodermal Dysplasias
6 Executive Dr., Suite 2, Fairview Heights, IL 62208-1360
Phone: (618) 566-2020  |  Fax: (618) 566-4718  |  Email: info@nfed.org | Web site: www.nfed.org

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