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Welcome to the NFED!
If you have a question, please complete this form and we will get back to you with an answer. If you or someone you love has been diagnosed as being affected by ectodermal dysplasias, please complete this form so we can send you additional information and offer support.
By completing this form, you will receive via email research announcements, family stories, monthly eNewsletters, and other news and updates.
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Please click on the appropriate staff member to contact them directly.

Kelley Atchison                                                                                             Seth Ferris
Director, Family and Community Programs                                                       Family Fundraising Coordinator
618-566-6873                                                                                                618-566-2020
Email Kelley                                                                                                    Email Seth
Jodi Edgar Reinhardt                                                                                   Mary Fete, M.S.N., R.N., C.C.M.
Director, Marketing and Communications                                                         Executive Director
618-566-6875                                                                                               618-566-6872
Email Jodi                                                                                                       Email Mary
Brittany Campbell                                                                                        Kayla Hollenkamp
Manager, Development                                                                                   Administrative Assistant
618-566-6874                                                                                               618-566-2020
Email Brittany                                                                                                Email Kayla
Lea Richardson
Manager, Community Engagement
Email Lea


National Foundation for Ectodermal Dysplasias
6 Executive Dr., Suite 2, Fairview Heights, IL 62208-1360
Phone: (618) 566-2020  |  Fax: (618) 566-4718  |  Email: | Web site:

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